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Tag Archives: birthday letter

1Nov2020

Dear Lila: You’re Eight Years Old!

Posted in Kids, Lila by Liz

Dear Lila,

Today you turn eight years old! We started your morning with the usual donuts, balloons, flowers and presents. I love showering you with attention on your special day, because you absolutely deserve it!

Screen Shot 2020-11-18 at 11.21.56 AM Read More

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Water baby loves the pool. #aldenroyb #naplesfl #s Water baby loves the pool. #aldenroyb #naplesfl #swimmingbaby #vacation #14monthsold
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Today was Alden’s monthly Hemlibra injection for Today was Alden’s monthly Hemlibra injection for his severe hemophilia A. We do these injections ourselves either at home or at the Hemophilia Center. Sweet boy usually only cries a few seconds and then is over it. He has never had a single bleed in his 13 months of life thanks to this medication, which he started at five months old. This despite walking, taking tumbles and living a normal toddler life. What a blessing! Science is amazing. ❤️❤️ #hemlibra #hemophiliaa #hemomom #bleedingdisorders #hemophilia #scienceiscool
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